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For 70 years Lou Gehrig has been the face of ALS. Sadly, in that time, not a single effective therapeutic has been discovered and most Americans know little to nothing about the disease. It is time to put a new, younger, face on the disease. I hope to be that face, and raise not only awareness, but also the funding necessary to put an end to ALS.
ALS is a disease that doesn't draw much attention because it is perceived as your grandfather's disease. A sickness
that affects a man that has lived a full life. It is quite the opposite. It touches the lives of young people every
day. This debilitating, cruel and inhumane disease deserves your attention. We deserve a cure.
When I returned home from Iraq I thought I was done fighting. Now, I am fighting for my life against an enemy that has been killing for over 70 years. We cannot win this fight alone. I am dedicated to seek out anyone who will stand by us as we wage war on this deadly disease.
I was 20yrs old, NOT even legally allowed to drink alcohol, but I was allowed to be diagnosed with a terminal illness without
hope! Doesn't seem right does it? People are being diagnosed with ALS younger and younger everyday. If we do not find a cure
soon, forget about saving money for your child's college fund, your daughter's wedding or your own retirement. You're going to
need every penny for their medical expenses, making your house accessible for someone who is in a wheelchair, hospital bed
etc. In this economy millions have lost their jobs and health insurance. ALS without insurance=BANKRUPTCY! Help us stop this
disease before it becomes an epidemic!
When I first got diagnosed it was a smack right in the face. I went from wondering what I would do that summer to wondering if I would even go to college. But I've read a lot about the effects of positive thinking, and it's helped make me feel better.
My last uncle died just 3 years ago", she shared. "It has not skipped a generation in our family from as far back as we have researched.
We got the news we dreaded. I have ALS. What happens next is the difference between ALS and any other disease. When a doctor diagnoses a person with cancer, diabetes, heart disease or whatever, the next part of the conversation is "What do we do about it?" whether it be surgery, chemotherapy or medication. When a person is diagnosed with ALS, the only thing a doctor can say is "I'm sorry."
I was just beginning a new stage in my life as a wife and mother when ALS cut me off at the knees.
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Rudy and Tootie
GALS-Gore Girls Against ALS
The YFALS (Young Faces of ALS) Campaign was created by a small group of people living with ALS today who all
share a disturbing characteristic - they all received their diagnoses before their 30th birthdays. Because ALS
has often been categorized as a mid-to late-life disease, there was no known national recognition of ALS patients
under the age of 30 prior to the establishment of YFALS. The campaign was created as a community for young ALS
patients as well as their affected families and friends. YFALS has become a catalyst for accelerating research
at the ALS Therapy Development Institute through
fundraising events. Learn how to fundraise for our YFALS here.