Beth Hebron


Beth Hebron

About Me

Beth was diagnosed with ALS on October 1, 2013. Beth grew up as a competitive gymnast and avid snowboarder. She graduated from George Washington University in 2010 with a BA in English and a minor in political science. Following graduation she continued to live in Washington, DC working as a paralegal. Following her diagnosis Beth made the decision to leave her job and move under her parents care in New Jersey. She now spends her time raising funds and awareness through her website for ALS TDI's Precision Medicine Program, that is when she's not traveling and checking off items on her bucket list!

What's New with Me

This past year has been a busy one for Beth. Cosmopolitan featured Beth on their website to help highlight that ALS affect's people of all ages, which you can read here. Following the article's release she decided she wanted to take a more active role in finding a treatment and cure for ALS. This led her to start a website devoted to raising fund's and awareness for ALS TDI's Precision Medicine Program. Beth held the launch of the website in April 2015 at Rock Spring Country Club in West Orange, New Jersey raising over $70,000. She is currently hard at work collaborating with the FDA, ALS TDI and several other organizations to change and improve the way clinical trials are conducted. 

Beth also spent the past year checking the  following items off her bucket list: 

1. Go sky diving

2. Go to Las Vegas 

3. Go to Oktoberfest in Germany

4. Return to Firefly Music Festival

Now she is planning her next trip to Paris! 

Donate in honor of Beth!