Originally from Orlando FL, Kevin was diagnosed with ALS on February 15, 2012. Soon after his diagnosis, Kevin founded the A Life Story Foundation and serves as its CEO. He currently lives in Bradenton, FL and cherishes his time with his beautiful girlfriend Elizabeth and her 2 amazingly smart, kind, and great looking kids. Kevin loves sports and the Chicago Cubs, great movies, and he'd eat out every night of the week if he lived in New York or Chicago! For his efforts against the disease Kevin was honored at the 2013 Leadership Summit with the Stephen Heywood Patients Today Award.
"ALS research is important to me as a person living with the disease, but also because we live in a time where analytics and technology are ever-present and evolving. I know there must be a way to crack the code that is ALS."
What's New with Me
In April the A Life's Story Foundation held the DeBartolo Family "All-In" for ALS Casino night, raising $50,000 to support the impactful research being done at ALS TDI. Only a few short weeks later, Kevin's foundation also held a Kentucky Derby party for their wonderful NYC network. The A Life Story Board is still at work planning events for the rest of the year!