Young Faces of ALS

Inspiration: Angelina's Story

Angelina Fanous was 29 when she was diagnosed with ALS and was working as a senior associate editor for VICE. See how she shared her story through her platform to help raise awareness about ALS and ALS research. See how Angelina's story was covered by Vice here.

Inspiration: Sam's Story

After his dad died of ALS when Sam was seven years old, he began fundraising to support ALS research. Through the Halpern ALS Initiative, he's raised more than $60,000 for research. Learn more about how Sam shares his story here.

Where to Start

Whether you want to write out your story or create a video, below are some tips to help you get started.

What's Your Connection to ALS?

Tell your personal story of how you've been affected by ALS. Why is ALS research a cause you fight for? How long have you been dedicated to ending ALS?

Why Do You Support ALS Research at ALS TDI?

Why do you fundraise for ALS research? ALS TDI is the world's most comprehensive drug discovery lab focused solely on ALS. It's the first nonprofit biotech in any disease to develop a potential treatment, AT-1501, and bring it from its lab, through FDA review and into clinical trial.

Tell People How They Can Help

Whether your goal is to spread awareness or fundraise, be sure to tell your audience exactly how they can help. Include a clear call to action as well as links to YFALS and ALS TDI social media pages.

What is ALS?

If your network is unfamiliar with the disease and how young people can be affected, share some facts to illustrate the need for treatments and cures as soon as possible. For example, most people live about 3-5 years after they experience their first signs of disease. There are currently no effective treatments nor cures for ALS.

Setting a Fundraising Goal?

If you are looking to fundraise along with sharing your story, it is helpful to set a goal for yourself and your network to keep in mind while fundraising. Having a specific number to work towards will build momentum.

How to Share Your Story

Share Through YFALS

Once you are done writing or filming your story we would love to add it to our YFALS blog page. Then your blog or video can be emailed to your network or shared through social media. Be sure to include any images you would want shared with the blog or on social media. We recommend at least one photo.

We will review your story and send you any edits for approval before adding it to the YFALS blog. Then your blog can be emailed to your network or shared through social media. We will also be sure to share it through all YFALS social media platforms.

Share Your Story with Us

Share Through Social Media

Facebook has made it easy to set up a fundraising campaign whether it be for a birthday, holiday or in times of need. Using their platform will also allow you to share your story and why you are supporting us with your network.

Create a Facebook Fundraiser

Need Help?

Need help writing, filming, or sharing your story? Contact a member of the ALS TDI team and we'll happily help you with your message and fundraising goals. Email us at marketing@als.net or call us at 617.441.7200.